Online Resources

Donating Plasma (sponsored by PPTA)
www.donatingplasma.org

Plasma Protein Therapeutics Association (PPTA)
www.pptaglobal.org


Primary Immune Deficiency (PI) sites

Immune Deficiency Foundation (IDF)
The IDF is a non-profit organization dedicated to improving the diagnosis and treatment of PI through research and education. The goal of IDF is to help patients with PI and their families to live a healthy and productive life.

The Jeffrey Modell Foundation, National Resource Center for Primary Immune Deficiency
A non-profit research foundation devoted to PI. The Foundation is dedicated to the early and precise diagnosis, meaningful treatment, and ultimate cure of Primary Immunodeficiencies.


AAT Deficiency Sites

Alpha One Foundation
The Alpha One Foundation is the only national research organization solely dedicated to developing the means to cure and control AAT deficiency and to improve the quality of life for those with the disorder. The strategic program direction and all activities of the Foundation are guided by representatives of the Alpha One Foundation, medical and scientific communities.

Alpha-1 Association
The Alpha-1 Association is a nonprofit organization that exists to help people with AAT deficiency and to act as a patient advocate. The National Association acts as a clearinghouse of information to assist healthcare professionals and individuals with AAT deficiency. Through this organization, people with AAT deficiency can meet other people with AAT deficiency who can provide encouragement.

Hemophilia and Other Coagulation Disorder Sites

NATT: The National Alliance for Thrombosis and Thrombophilia
www.nattinfo.org

NHF: National Hemophilia Foundation
www.hemophilia.org